Thread: Lyme Update
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Old 05-17-2010, 06:03 PM
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
LizaJane LizaJane is offline
Member
LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
Default update

Sometimes I feel I send these updates to the wind...but here goes...

Last I wrote I was seemingly having a recurrence, and was having very low blood pressure, about a month ago. My doctor felt it was adrenal--not autonomic---and gave me adrecor, a supplement marketed as adrenal support. My blood pressure normalized. I had cranio-sacral massage therapy to my neck (in case it was pressure on the carotid sinus or vagus nerve which can affect blood pressure, because my neck WAS hurting). At the time I also had burning of the fingertips, and around my mouth, old neuro sx friends.

My doctor stopped the diflucan, and I'm just on grapefruit seed extract, which is said to be bacteriocidal to the lyme bacteria. ????? I no longer question too much, as long as the thing is harmless, and it seems harmless.

And now, I've been totally better for over a week. Maybe 2. This weekend I walked 6 miles on Saturday, a 10 year record. I wanted people to read that, so that you could see that even when things wax and wane, and there are bad times and good, there can be a trajectory in the right direction.

I feel that even with bad spells, the overall trend is good, and I'm grateful for the lyme diagnosis and treatment.
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LizaJane


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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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