Hi
Welcome to the forum. There are lots of helpful people here.

Have you been to see an neuro-ophthalmologist? There are a number of tests/screenings that they can do that may help clarify things; particularly since the double vision is one of your main symptoms. Are you also experiencing ptosis?

Good luck with your next appointment. It's helpful to have someone accompany you to the appointment. They can be your note taker, or maybe just recall things that you may forget. Four ears are always better than two.

Keep us posted.

Cate