Quote:
Originally Posted by catie
Hi
Welcome to the forum. There are lots of helpful people here.
Have you been to see an neuro-ophthalmologist? There are a number of tests/screenings that they can do that may help clarify things; particularly since the double vision is one of your main symptoms. Are you also experiencing ptosis?
Good luck with your next appointment. It's helpful to have someone accompany you to the appointment. They can be your note taker, or maybe just recall things that you may forget. Four ears are always better than two.
Keep us posted.
Cate
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no, i haven't been referred to a neuro-opthamologist. it was suggested by my optomotrist (who i first saw for my symptoms), but my PCP sent me to a neuro.
i have bilateral ptosis. i thought i just looked tired all the time, but when the neuro compared it to the picture on my license from years ago, you can see the difference. sailing at half-mast is how i have been described.

my doc said something about the next step being a SFEMG in Boston, so for that appt I will definetly bring someone. Thanks!!