--though I'm sorry about the situation that brings you here.

It sounds like your son has had a lot of testing--but we always wonder here just how thorough that might have been; a lot of non-speciality docotrs have somewhat limited conceptions of what might possibliy lead to certain symptoms outside their own areas of expertise.

Could you be very specific with what tests he's had, and what the results were? There are a lot of very good interpreters here.

Also, while this series of spreadsheets was compiled primarily for people with neurological symptoms of unknown origin, it's been very useful for a wide range of people, simply because neurological symptoms can be caused by so many things:

www.lizajane.org

A great way to track results over time, and suggest other avenues to doctors. I know that when I read what you posted, I wondered if yoru son had been tested for celiac/gluten sensitivity and anti-nuclear antibody vascular/connective tissue disorders beyond lupus, among other things.