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Member
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Join Date: Apr 2010
Location: GulfCoastSouth .... April 2014 rudely displanted to the cold wet windy gloomy NW coast.
Posts: 675
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Member
Join Date: Apr 2010
Location: GulfCoastSouth .... April 2014 rudely displanted to the cold wet windy gloomy NW coast.
Posts: 675
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Heterotopic Ossification: post-TBI/SCI
Hello, All, in the Neurotalk.com forums,
I have in the past recent weeks been called-upon to put into action my best, former-excellent-Researcher-capabilities, to 'ferret-out' the best possible specialists to evaluate and direct course of possible treatment for severe TBI survivor (broken neck) x 20 years, who has only recently been direly diagnosed with extensive, progressed heterotopic ossification. We are at a loss for any knowledgeable physicians in this region; most respond: "I've never heard of that." When, in fact, it is supposedly fairly common complication in traumatic brain injury (TBI) and/or spinal cord injury (SCI)--- as well as in hip replacement; and in amputation.
Does anyone, any family have any experience or knowledge of "H.O."?
If so, we most welcome your communiques and information sharing here.
Sincerely,
Theta Z
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50s Babyboomer; 2008 high-impact rear-ended/totalled-MVC, closed-head injury->pcs ... "Still dealing with it."
1993, Fell on black ice; first closed-head injury; life-altering. // 2014 Now dealing with Peripheral Neuropathy, tremors, shakiness, vestibular disorder, akithesia, anhedonia, yada yada, likely thanks to rx meds // 2014: uprooted to the cold wet gray NW coast, trying to find a way back home ... where it's blue sky and warm!
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Each and every day I am better and better. I affirm and give thanks that it is so. // 2014-This was still true for me last year, I truly felt this a year ago. Unfortunately it holds no meaning for me now. Odd, it was the Theta mantra for years. Change change change.
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