Welcome to this truly wonderful community! I am so very, very sorry why you found us and I feel so badly for what your son is going through. His pain and frustration must be so high; I hope he gets great pleasure and that feeling of true accomplishment from his graduation. To achieve that while going through his medical challenge is really worth admiration and great praise!

I am certainly not qualified in any medical capacity, whatsoever, and please do not take this as more than just my thoughts. Something immediately leaped out to me from my own recent experience as I read his symptoms, types of specialists seen, drugs used, the results that ruled things out without finding the real problem.

Might your son have slipped into the effects of malnutrition caused by what the doctors are looking for? Even though I presented all the classic malnutrition symptoms at every later Dr appointment (significant weight loss/weight not near the low-end for height, mouth sores, severe pain that was more pronounced in joints, fairly sudden inability to walk), they didn't 'see' it. They continued the search for some disease, while its by-product was overpowering the real problem and doing great harm.

Again, all just simply thoughts. Maybe a complete, current blood panel on all vitamin, protein, sodium, hydration, and other indicators of moderate/significant nutrition? A person will get to the point where they simply do not want to eat from fatigue, alone.

I know you will find support, hope, and pointers here. It is truly full of great folks who will, at bare minimum, give you tremendous emotional support.