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Old 05-22-2010, 12:50 AM
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vlhperry vlhperry is offline
Member aka Dianna Wood
 
Join Date: Oct 2006
Posts: 736
15 yr Member
vlhperry vlhperry is offline
Member aka Dianna Wood
vlhperry's Avatar
 
Join Date: Oct 2006
Posts: 736
15 yr Member
Thumbs Down Consortium on Risk for Early Onset PD

Any one aware of this NINDS Grant study (known as CORE PD) besides myself? Laura and Carey, do you truly support the selling of confidential, information gathered by non-profit (National Institute of Neurological Diseases) sponsored research to private (National Diagnostics, Inc.), to sell to Pharma Companies to create for profit disease specific treatments to sell to specific disease patients?

Have you read the research sharing verbage on these free grants provided to companies like National Diagnostics, Inc. (for profit)? There are so many exceptions to the free sharing act and the sharing of information is not even considered as a primary requirement in the decision making of who (what private company) gets the grant.

When I became a participent in the above mentioned program, I was assured the genetic information I gave would not be sold to private companies. I am an idiot for buying into the government "Voltaire" philosophy of life. I have ratted out myself and every patient with Parkinson's Disease.
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