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Elder
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Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
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Elder
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
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After first being dx in 2006, I began Betaseron. I had my 3 month follow up, and my liver enzymes were thru the roof! I set a clinic record. I didnt feel badly, but it was clear, I needed to be pulled from the med.
I have been on Copaxone since that time, and it took more than a year to start working with me. They clinic was ready to pull me from the drug, and finally about 14 months in, it was clear it was having a stablizing effect on my MRIs. fast forward 2 years, almost 3 and I feel MISERABLE on this stuff. I cant focus, I am easily distracted. I am more heat intolerant, I am grouchy, and feel angry at the world. How do I know its the C? when I stop, ALL these sx go away!
I dont feel that C is helping or hurting me, other than the side effects. The clinics keep telling me that since I couldnt tolerate an interferon, that ALL other interferons are out of the question for me. Inc Ty! I cant take LDN because I take narc meds, and cant give them up. I stick with the c because, its either this or...hiC or Novatrone. Since I did so much chemo in the past, I doubt I would qualify for novatrone or HiC anyway.
I do feel my MS is progressing, and now we are playing the SPMS vs RRMS and the CNS vs ANS MS game. I hate this silly disease.
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RRMS 3/26/07 .
Betaseron 5/18/07 .
Elevated LFTs Beta DC 7/07
Copaxone 8/7/07 .
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