Quote:
Originally Posted by Braveheart07
Hi,
I am new to this post----just wondering if anyone has had experience with Multifocal Motor Neuropathy with Conduction Block and what has worked for you. I am scheduled to receive IVIG therapy soon, and am curious about that as well.....Any info. would be greatly appreciated..
Thanks !! Doug
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Hi Bravehearto7,
I was just checking in to see the newest on NeuroTalk and saw your post and how many people have replied or just read it. I guess this shows an interest bigger than I thought. I was diagnosed at Mayo Clinic in MN
in 2006. I figure I've have had MMN w Conduction Block since about 2000. I am in Michigan. I have weakness in both hands (started in the right) and left leg and foot. I have IVIG every other week -30mg- and think it is at least keeping things in check. Everything seemed to take a long time...to get diagnosed...to get insurance okay.....this is the first year that I have had the ok to have treatment every other week...etc. I welcome any questions, thoughts, feelings.
I am so glad that you posted your message!!!
Christine