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Koala77 · 05-22-2010, 10:22 PM

Thank you everyone for your replies. My question has definately raised some excellent points for discussion.

Quote:

Originally Posted by Debbie D

I've read info that states that the older you are, the MILDER your MS will be. But my neuro has stated in many lectures that it's the length of time that will determine disability. He feels, after years of treating MS patients, that after 10 years many MS patients will go from RRMS to SPMS, with disability in some form or another presenting...........

It's interesting that your Neuro seems to negate that woman's claim Debbie while at the same time implying that we're all going to progress with age or years diagnosed.

I was diagnosed at 25 and have been diagnosed for over 30 years now (do the sums

), and although I'm no longer able to work, it was a combination of medical conditions rather than just MS, that caused me to give up my career and accept a disability allowance.

After over 30 years I still have RRMS, and I consider myself luckier than many because that I still am RRMS. Lucky is a strange adjective to use when discussing a chronic, incurable neurological condition, but you get the idea.

Quote:

Originally Posted by Blessings2You

This was from a study (2006?) by the American Academy of Neurology:

Conclusions: Late-onset multiple sclerosis (LOMS) is not necessarily associated with a worse outcome: first, progression in the primary progressive or relapsing patients differed little between late-onset vs adult-onset; secondly, those with LOMS were older when reaching Expanded Disability Status Scale 6. The disease course has a far greater implication for disease prognosis than the presence of LOMS.

Thank you Blessings. I guess that statement says it all and does reflect my own thoughts from the beginning. I appreciate you looking it up for me especially as I was unable to find anything like this myself.

Thank you for telling your story Finlady, and I'm sorry about your mom. I'm glad that you're doing OK and I hope it stays that way for a very long time.

Thank you everyone else who've replied so far. I truly appreciate the information that you've given and the thoughts you've shared.