Hey there! I was so happy to see you posted!
So you have been kicking butt @ work,huh?
I'm so proud of you!
THigs have been crazy here as well. The Mayo was grea, but they didn't really give me any new info. I've had so many new breaks since the cyclosporine that I had to have emergency surgery 3 weeks ago -I turned my head to the left and my back "popped" and I was unable to move - plus it hurt like hell!
I already knew it was broken and was scheduled for surgery this coming week but it worked out......Now the other side is broken
........I could scream!
I finally went to see that "super neuro" here in SA and he was AWFUL!
He actually had the gall to tell me that I will NEVER get better and will end up wheel chair bound or die early - I told him he must still be ****** about losing his job @ Hallmark - what a jerk!
He then did the strength test and THAT is when my back initially broke.
I am up to 200 lbs. now. It is so hard hurting all of the time and looking like this. I wear maternity pants b/c my stomach is so swollen........
Loooooooooooooooongstory short; that is why I haven't been on, but I have been thinking about all of you and missing you terribly!
Love,
Erin
Quote:
Originally Posted by ConnieS
Hi Everyone!!! I've so missed all of you!!
Sorry I haven't logged in much, took me a while to get things sorted out for Dad and family, then now I've been back at work since Jan.  went back against my family's wishes, namely because mum wanted me to rest more, since she always felt that my symptoms were due to "overwork". Lol.
And.... I just found out I'm currently the top in my branch! it's so amazing, I didn't even realize it. I overdid it sometimes, would end up having to take days off and more visits to the doctors, but I still did it. I want to carry on working for as long as I can, hopefully till I really turn 80. Lol...
My condition has been manageable, still hate the spasticity, but am learning to manage it still. Certain days I just don't feel like taking the cane due to stiff and sore shoulders but I still have to. Some days I just refuse to and end up dragging my feet everywhere. I'm lucky in that I still think I am fairly mobile, and no one part of my body has given up on me yet. Recently voice has been changing and am trying to ignore that. Been feeling breathless for past 2 months, it's building up and my GP thinks it maybe my childhood asthma. He put me on predisone which didn't really make me feel better. It's like this weight on my chest that is always there. I'm still hoping for a differential diagnosis, may go and see another neuro soon. Gave up on my old neuro as he kept changing my diagnosis. Lol. From ALS to pls to ALS to stiffmans syndrome. Not to mention occassional anxiety disorder again. He's driving me crazy.
Been trying to delay seeing a neuro after that as just didn't want them wasting my money and time, not to mention energy. Lol. Maybe one day I'll be brave enough to see one again.
How's everyone? Pat? Becky? Annie? Erin? Nicky? Kate? Sue? Kelly? Maurice? So many of you whom I've been thinking about. I promise I'll update more. |