Thread: Last One!
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Old 05-24-2010, 09:10 AM
bobinjeffmo bobinjeffmo is offline
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Join Date: Mar 2009
Location: Lohman, MO
Posts: 120
15 yr Member
bobinjeffmo bobinjeffmo is offline
Member
 
Join Date: Mar 2009
Location: Lohman, MO
Posts: 120
15 yr Member
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1: I had a doctor within 2 weeks after the accident that knew I had nerve damage and RSD. Chief orthopedic doctor for State of MO Orthopedics.

2: I was only denied treatment while I was under Workers Comp care but as soon as I was released, I've never had one single problem since then.

3: I've never been told it was in my head. There was more than enough physical evidence to back up the doctor's findings at each step along the way.

4: I've never been called a drug seeker, in fact my doctors are usually worried that I should be taking even more, but I'm the one choosing to keep things where they are. Addiction has never once been brought up by any of my medical staff.

5: I've never gone to the ER except over infections. The few times I have gone to the ER, I've always been admitted and then screamed at by some doctor for not getting there sooner. I've always thought people run to the ER to much, so I sort of go the opposite direction and no matter how bad it gets, I never go. It's only after being ordered to the ER after seeing my doctor in his office that I've usually gone. Since I was always checked in, I guess you'd say I was in better shape when I left, but I've never once gone to the ER over pain alone.

6: No, I've never felt alone once. I'm amazed at the quality of care I'm so blessed to get. I've never been told it's in my head because it isn't and my body is more than happy to prove it. While there are always some rather rough days, I can't say it's because others didn't/don't care. but I've been known to not care about myself and this disease more than once - daily.

The only area I ever had problems was with Worker's Comp and while I under their care while they sent me to a total of 9 doctors. The problem was, their own doctors would tell WC I'm screwed and that the damage is getting worse. Since WC didn't want to hear that report, they'd then send me to another doctor. Once I got the no further improvement report, I then started with a primary, specialist for RSD and a pain doctor who I've been with for 11 years now and they're just the finest men I know. Their kindness astounds me and without them I wouldn't be alive today so I owe them a lot. I wake up every morning amazed for my blessings that I'll never really feel I deserve but that I'm eternally thankful for even though my crushed nerves and RSD has changed my life in ways I never could have dreamed possible.

I woke up with a pulse - from here it's pure gravy. Best of luck as you get your info together. Bob.

Quote:
Originally Posted by msdrea83 View Post
So I have one more speech to give... thank god its the last! Its a persuasive speech, so I'm going with something along the lines that Doctors need to believe in "invisible disorders".., or something along those lines...

I have to do it on the 15th, so I'll be using the answers that are posted through like the 13th.... and everything will be anonymous

I have a few more questions if you all wouldn't be sooooooo kindly to answer so I can make some statistics/charts... all that fun stuff! Thanks guys!!!!
(o ya, last speech, i left out that I had rsd till I was done and answering questions... they were all like and i ended up spending just as much time giving them answers to questions as I did in my speech)



1. How long did it take to get a dx? how many docs?

2. have you ever been denied treatment?

3. Been told its in your head/making it up... etc? by family, friends or doctors?

4. Been called a drug seeker/addict?

5. Not been believed at the ER?
-left the ER in more pain then when you arrived?

6. Felt you were alone at least once since getting the dx?
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