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Originally Posted by Lisa in Ohio
Loretta and TShadow, I am so sorry to hear this. They tell us to manage our pain, then do not like it when we do. It seems like there is not much pain relief out there for us. I had to go to the er once on the doctor's orders ( he told me if I didn't show up there in an hour, he was sending an ambulance) and even though they knew I was coming in, treated me terrible and did nothing for my pain. I eventually walked out and that got their attention. I hope today is better for both of you, Lisa
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Lisa, I'm sorry your aren't getting proper pain relief. I went to hospital in an ambulance (after passing out for hour and half) and of course seen right away-admitted for several days. In fact the paramedic told my husband I was dead. NOT YET-i say. A couple of years later. my husband drove me to hospital and waited several hours-I laid down in car and he waited inside for my name to be called. After several hours and them saying it would be a while longer, we drove away. Absolutely ridiculous. It seems the only way to get immediate help is to arrive in ambulance.
Sorry this happend to you. How did you get RDS? Has it spread?
I'm 62 and had it 15 years. spread full body and internal.Mine followed breast biopsy. I'm thankfully mobile, except one hand is 50% range of motion.
I'm grateful for you you friends here-the support and understand keeps me sane. Thank you everyone. your friend, loretta with big hugs
