Daylily, I be concerned about starting volunteer work as you are applying for SSDI. If you are able to volunteer regularly, will SSDI think you could work regularly ?

I completely understand that just because we may be able to 'pass for normal' for a few hours a few times a month, that does not mean our condition is not severely disabling, but who knows how the politician would view that, how he would report it to SSDI , or how SSDI would interpret it.