Denae,
I just wanted to say that the paragraph in your journal where you say you went to a group meeting where the parents were saying how they were told their child would not be able to this or that and that they turned out to do so much more, yet, you were told that Riley would be able to do so much and she clearly can't---well, that is my experience with Sarah. When she was young, all i heard was she is fine, she does not look "syndromy", she will come along, etc. Sarah fooled them all. She is entirely dependent for all things-eating, toileting, walking, speaking-you get the idea. The complete opposite of most people's experiences I have found. Just wanted to share.