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Originally Posted by TinaG
Hi, I too have had a ton of symptoms (fainting, migraines, bloating, nighttime itching, spaced out feeling, chronic fatigue, mouth sores, blah, blah, blah..) for almost 15 years and the only real test I have had is the TTT, which really wasn't that bad at all. I wish I had more answers for you, but I have a question. I am going to see Dr. Khurana next month (after waiting 5 months). I cannot wait! Can you tell me if you were happy with him? I am hoping and praying that he will find out why I am this way. I have yet to find a doctor that is really knowledgeable about autonomic disorders (other than Peter Rowe at Hopkins - who is AWESOME, but won't take adults) and I am really excited about my appointment. Any advice would be great. You could email me directly if you want. THANK YOU!
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TinaG, I have seen Dr. Khurana twice. He seems like a good doctor in that he spent lot of time with me going over my history. He also does a lengthy exam. I will not have a true impression of him until he concludes the diagnostic part of my treatment. In other words, will he drop me like a hot potato if the tests do not show what he is looking for, or, will he sincerely try to help me and not get frustrated with me. This is the make or break as far as I am concerned in a doctor/patient relationship.
One thing that I dislike is the appointment scheduling. Both times I have seen him, my appointments were changed - usually on short notice too. Also, bring a book - he tends to run late.
I think you will like him. He is pleasant, seems very knowledgeable and professional.
I also have an appointment at Johns Hopkins (Dr. Sumner) next week. My regular neurologist made the appointment for me because they were originally able to see me sooner than Dr. Khurana. Of course that changed because I saw Dr. Khurana much earlier than my originally scheduled appointment. I think I will keep the appointment though. Can't hurt to have two opinions.
Do you live in the DC area? I am outside of Annapolis.
Also, does autonomic dysfunction result in itching? I have had intense itching requiring Benedryl when I have been in a bad attack - never knew it was a part of the syndrome.
Best of luck to you,
Mere