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Old 05-27-2010, 01:44 PM
shayna shayna is offline
Junior Member
 
Join Date: Jun 2009
Location: Nevada
Posts: 80
15 yr Member
shayna shayna is offline
Junior Member
 
Join Date: Jun 2009
Location: Nevada
Posts: 80
15 yr Member
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I'll have #33 tomorrow. I've spent the last few weeks trying not to think about PML. My neuro told me she will be involved in the assay testing but she doesn't know when it will begin. She said that as soon as she knows anything her office staff will begin calling those of us who want to be tested. I can't imagine being on Ty and not wanting to be tested. But, until I have the test and hear my results I'm "sticking" with Ty...please forgive the pun If my results are positive I'll cry!!!!!!!!!!!!!!!!!! I love what Ty has done for my QOL. My life will never be the same as it was prior to my last exacerbation 6 years ago but Ty has made a huge difference.

For me...at this time..ignorance is bliss. Until I'm told that PML is a possibility or I have an adverse reaction I'm going for my infusion every 4 weeks and I'm trying not to worry. I wish every 6 weeks had worked for me but it didn't.

My youngest grandchild called this morning. Her 4th b'day was a few days ago. She wanted to know when we would be coming to California so she can have her b'day party I told her I'm going for my "special medicine" tomorrow and that her grandfather and I would be there in a few days. The children understand how important this medication is for me. They've seen the difference....I can now walk, run with them, go up and down stairs and play with them for hours at a time They love my "special medicine".

I decided to check on PML updates this morning and except for that 1 site all of the other information states there have been 49 cases of PML. Since my DH hasn't said anything about new PML cases I'm going with 49 cases. He doesn't believe that ignorance is bliss...LOL

I hope everyone is doing well and that we all test negative.
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Grammie 2 3 (05-28-2010), Natalie8 (05-29-2010), Riverwild (05-27-2010)