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Old 05-28-2010, 10:00 AM
NM_Dewey NM_Dewey is offline
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Join Date: Nov 2009
Location: Belen, NM
Posts: 39
15 yr Member
NM_Dewey NM_Dewey is offline
Junior Member
 
Join Date: Nov 2009
Location: Belen, NM
Posts: 39
15 yr Member
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Quote:
Originally Posted by pabb View Post
http://www.ncbi.nlm.nih.gov/pubmed/17951282
since there appears to be a Calcium issue here, i would have to wonder about Vit D and magnesium as well. As the celiac folk can tell you, having the genetic predisposition doesnt equal having the active disease....perhaps the genes are causing a problem with absorption/use of certain nutritional elements. I also wonder if you might have inherited the sca2 from one parent and celiac gene from the other.....good luck
Unfortunately I do have the active disease. Atrophy to the cerebellum, ataxic gate, double vision, muscle cramps and spasms, loss of fine motor skills, speech impairment, loss of balance, fatigue. I will be going to see a SCA specialist and one of the things we will start is a supplement program to help with symptoms. I've been experiencing symtoms now for about 7 years. I have watched the disease progress. At this point I'm willing to try most anything.

Dewey
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