Quote:
Originally Posted by mimichicago
thank you to all the generous, awesome posters that responded! i'm definitely going to check out these suggestions.
catra, i know exactly how you feel. my mom is always pushing me to fight for a solution, my dad is always saying "hey, can you bike yet?" and on my bad days i'm like "you get that this is CHRONIC and PROGRESSIVE, right?" but i also think sometimes that the body WANTS to be well, and that maybe i will find the right combination of things to one day get i back that way. who knows. my optimism/pessimism cycle marches on.
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I love Dr. Sandeep Amin at Rush University. He totally gets RSD AND he is a great listener and partner in care. Dr. Lubenow is great too but I have heard that his bedside manner is a bit brusque. This man has helped give me back a big piece of my life. I don't care for Rehab. Inst. of Chicago - I went there several years ago (pre-RSD) for Fibro and they did more harm than good. But that was just me and others love them so... Good Luck to all.