Hi Lee ~ Another Lee here. lol. I wonder why your doctors haven't tried a drug such as Topamax. This type of drug is used for nerve type pain. It stops the burning/tingling/stabbing pains from nerve pain. I'm not saying that's what you have, but I'm just wondering if Topamax would help? It sure can't hurt to try it. Another drug similar, Neurontin, I wouldn't want to try as it makes you gain weight from water retention, makes you feel kinda "loopy" and just overall not very good. lol. At least that's what it did to me and ALOT of other people.
Why not suggest Topamax to your doc? i've been taking it for 8-9 yrs. now and I've never had an increase in dosage.

I've been on 400mg. per day from the start. It's just a thought. Best of luck and I hope you feel better soon. Take care & God bless. Hugs, Lee