Tyson,

I really feel for you and wish I had some answers for you but don't.
I havn't slept for the past two nights as well, and now am struggling to walk and breathing is a concious effort.
My brain is eager to go out and do stuff, but my body is like a Salvador Dali picture, sliding off the canvas..........................
Laying down always makes my breathing worse, try propping yourself up a little.

I wish your Dr's would do something as well, but even after 7 years I get the feeling my drs are thinking "geez I've already told you, you arn't my worst case so go away and live you life already....."
I wish I had some answers, but don't.
take care, and keep comming here for support, at least we can all commiserate
Kate