Last November my neuro put me in the hospital for high dose of steroids by IV. They need to monitor your blood sugar while doing this because it can spike. I don't have diabetes, but over the course of the 3 day treatment it did spike several times and they had to give me a insulin shot about 3-4 times. Anyway, the treatment didn't work and actually I got worse -- experienced chewing and talking problems which I didn't have before. Then he ordered plasmapheresis every other day (up to 5). Also moved up my thymectomy to do after the plasmapheresis and while I was still in the hospital. It had been scheduled for the following month. I went into the hospital expecting to be there for 3 days and ended up staying 12 days.

I'm doing well now -- just take 30mg of Mestinon 3 times a day. Tapered off Prednisone from December thru April. The only "symptom" I sometimes still have is twitchy eyes from time to time. I'm dealing with the heat so much better than I did last summer. Don't know whether this is considered remission or not, but I'll take it.

Are you on anything other than Mestinon? What about Prednisone?

Hope you can avoid the hospital, but sometimes more drastic treatments are needed. Good luck.