Annie,

I have not gone off anything yet!!! I crashed while ON THE MEDS at 30mg pred and 60mg mestinon.

Upping the dose to 90mg at 1:30 pm did increase the strength in my legs a lot but they are not back to what they were before the crash. I guess it will take some time to get to steady state with the new dose.

So if the antibodies are bound for me in the tissue, should I ask for a muscle biospy and be done with this? What is the accuracy of that test?

Thanks for writing. I was just lying around resting anyway. I wasn't even doing a thing when it all just flipped on it's head.

What's a girl to do? Is there any understanding this?

debra