Quote:
Originally Posted by nays
Hi Diana,
I was diagnosed with palatal myoclonus 12yrs ago. I hav constant clicking in both ears, which can be heard by other people. I hav been on rivitrol, epilim and tegretol medication, none of which worked.
In the last few months the clicking has been painfull and therefore I am now looking inot more treatment options. Im considering the botox injections but am a little worried about the side affects. Is it true your speech changes??
Also do you know anything about the drug Trihexphenidyl?
Renee
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Renee,
Sorry I just noticed someone responded to my comment! Haven't been to this site for awhile, sorry. Yes I tried Trihexiphenidyl. It was awful. It didn't help. I tried Botox six times. It did affect my speech and swallowing for a few weeks but it didn't help my PM. The symptoms indicate that they've Botoxed the right place. Sometimes it works for PM and sometimes it doesn't. I worked up to 15 units and the ENT wouldn't try more. You've had it for quite sometime. I'm beginning to think mine is caused by a spinal problem. Degenerative Disk Disease. I also have lots of crunches in my neck that are quite loud and started the same time as PM. It was also the same time I had a rather aggressive spinal manipulation by a chiropractor.
Diana