Member
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Join Date: Jun 2009
Location: Texas
Posts: 748
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Member
Join Date: Jun 2009
Location: Texas
Posts: 748
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Hi Teresa...and Welcome!
My experience is somewhat similiar to yours. I am seroneg, 'just barely' passed a SFEMG, had/have a droopy eye and mouth corner (which I never really noticed!). Can totally relate to your comment about laundry -- it was taking me FOREVER to fold!! and I just kept thinking I was getting out of shape way too fast for my age! Then started noticing that I was getting really good at using my left hand to get things done (cuz my right hand/arm just got spent and needed a break).
But when I couldn't play a whole round of golf anymore-- well, that did it. I had something specific to measure against - -and as I went through the dx process, it was getting worse. Like you, I worried about where the bottom was.
Fast forward one year. I have been taking Mestinon and it has been like magic. I slowly started rebuilding muscles and stamina. Now I feel quite good most all the time. It's still there - I have to be careful in the heat and can't always get everything done in a day that I want to....but I am so much better than when I was trying to get a dx.
There are a lot of folks here who have not been as fortunate as I have. But it's important for you to know that there are some MG'ers get along fine on Mestinon alone and are lucky enough to keep their life 'mostly normal'.
Sue
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