I also agree w/Mrs D about BEING YOUR OWN ADVOCATE! Actually, YOU are a star! Not so 'n so! YOU've gone thru more, pain and loss and the like! And, you can become a star for your area by talking to your area, state and national representatives about who you are and why you're there and why you care!

BTW? The neuropathy group you mentioned is NOT qualified as stellar in the various 'giving' evaluations. They don't post their annual reports nor do they distribute them. Take a look at the board? Then watch it...it never changes. I used to evaluate non-profits? A non-changing board, means a non-evolving organiztion. Enuf said.

REMEMBER: WE ARE THE STARS! And we deserve to be! - j[/QUOTE]

Dalhek,

I totally agree. This was my concern. That organization is a sham and a poor representation for people with Neuropathy. We need an organization that can't be bought by DRUG COMPANIES and that is proactive. This goes for many other diseases and disorders. Our medical establishment is running people in reverse.

Neuropathy is not the only disease whose resolution is stagnating and treatment faulty. There are many more. If one were to go to Europe and get treated, they would be in awe of what real problem-resolution medicine can do. We have symptom prolongation- medicine here in the States and it is beyond time for a change.

People are being lied to, hurt and degenerating faster and faster, just for a measly buck. I never paid it any mind until it hit me in the face. But its simple to see how its engineered really crooked and its pretty sickening. I think the best thing we can do for others besides helping them find releif is waking them up to this sobering reality. Hopefully, then they will wake others and we will have a solid foundation.

Change will not happen until people realize that the system is broken. The path toward resolution of this disease and others will not happen until we tell them its broke and ask them to fix it. Real change will occur when all members of these communities are awake and confront their doctors, congressmen and senators about this ineffective establishment. Only when people in numbers stand together and demand this change will the system will be forced to evolve and truly help.

The worst thing we could do is act alone. I think soon we all need to come together and stand as one at some point. One issue at a time, one peice at a time, until this system is forced to legitimize and act in favor of the people it was designed to.

We need a true group advocate in our corner and the Neuropathy Association may not be it Funny thing is I blindly gave them $100 when I found the site because I thought they wanted to help. I guess we can all be deceived.

Sorry for the rant but this has been building for a long time. I started this thread looking to see if others saw this problem, and this confirmed it. This forum and its contributors are awesome. I am now just thinking of other ideas and means to really take action and make this right. This issue is important!