Quote:
Originally Posted by mamagoo
I saw a movement disorder neuro in Omaha NE and he said "i'm leaning toward the epidural being the cause."
Just got local results of MRI's of head and thorasic spine and they say they show nothing. So now they want to do C-spine mri. I have had soooo many blood, urine, and the mri's that it is crazy that they say "oh, we didnt find anything everything is "normal"... well then why does my leg jerk around all the time now. I am so dang sick of taking pills and when have a problem with one of them they just throw in another to try and stop the problem caused by the other ones.
I'm in trouble at work because of missing so much. My supervisor is great and heck one day when my hamstring decided to cramp and twist my leg/foot around she would not leave my side. She has been so sweet and feels bad that I have a warning coming, never had one in the 10 yrs been working there. I'm out of FMLA as it ran along with the short term disability back when this got so bad that I was off for almost a full 12 weeks from Jan 18th. I honestly dont know what to do or which way to turn next. I have already passed my deductable and out of pocket for the year (6000.00) but you still have to pay the co pays for the office visits and at 35.00 PCP and 50.00 specialist and not being able to work because if I take the meds to get my leg calmed down they knock me out. I should be asleep now as in 1.5 hrs my alarm to get up for work will be going off and here I am because my leg went nuts and got wrapped up in the bedding, good thing i'm single or would be kicking the cr** out of anyone who was in bed with me LOL
Hope you have better luck than I am having in this mess...
God Bless and may your Special Angels wrap their wings around you and bring you comfort.
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I know what you mean, I was lucky and have a disability policy that pay 1\3 of my normal salary but that still makes things rough. I have seen 13 DRs and even a disorder Dr. But they all seem to know each other and are covering something up. Only one would say it was from the epidural but then he dumped me by referring me to another. They now are trying to say it is all in my head even though I jerk while in my sleep if I roll on my side. It seem that any time I am up and put preasure on my lower spine that the jerking starts slow at first and then get worst the longer I am up and the pain increases. Riding in a car with the vibration and bumps get it going real bad.
I was forced by Metlife to file for SSDI but they rejected the first filing and the appeal has been going on for 5 months now.
I think that they damaged a disk or nerve when doing the epidural. The convently lost the film of the procedure. Either that or broke of the barb or part of the needle in my back that is causing the jerking. (kind of like a short out in electric) I each pain pills till my stomach is hurting and the hit the an acids.. As far as sleeping I had to get another bed due to waking my wife up when the jerking starts at night or when I go to bed keeping her awake waiting for it to start.. My jerking is in the lower back when up , but when I lay down it is in lower back and my legs.
I am looking into laser surgery ... They say when they go in and look around they find all kinds of things that do not show up on MRI or CAT.
I know one thing I am tired of it all and VERY Disappointed in the medical practice. They seem to not want to take the time to investigate and get involved. I am sick of seeing Dr for the second time and paying their big bill just to be told they can not help. Why do the not just pick up the phone and call you and save us the trip and cost ... Well we know they want the $
I will say that the pain use to get bad in 30 min but now 16 months later it seems to take an hour to get real bad . But that could be due to the stronger pain pills also. Like I said I am tired of it , been house trapped except for Dr visits and Pt the whole time. I have just got a inversion table to try it has not even been put together yet hoping it will decompress my disk and help. I have a tens unit which seems to take my mind off the pain when it get real bad that I use.
Hope to hear back and know your frustration.