Debra,

Sorry you are going through this. My initial response is to wait for the LEMS result then get a second opinion before any more tests.

But the better response is to ask you what your expectations are. You are already on pred and mestinon. Do you wish to pursue different course of treatment in addition to or instead of the pred/mestinon?

If the answer is yes, then I would re-request what I wished to pursue with my current neuro - and if that was still met with resistence, I would seek a second opinion (after the LEMS result but before another SFEMG).

It can be so frustrating (and tiring), but try not to let the stress get to you....far easier said than done, I know. Pls. let us know what happens.

Sue