Thank you Sue : )

I totally hear what you are saying and I think it is sound advice. I have never had an SFEMG before though just to be clear. . .and I think we are going to be pushing the going off the meds thing again which I don't even want to consider if I can't do it right this time.

I am not sure what my expectations are since I don't understand what the heck my body is doing. Am I getting better on pred and mestinon or just covering symptoms of a crisis? Is there a way to tell?

When I tried to reduce pred twice it was disasterous. So it seems like I may need a more intensive treatment like plasmapheresis or ivig from what I'm reading. . .is that right?

I have had 2 opinions in that I had the hospital doc and now a new outside neuro. does that count as a second opinion?

I know I should try to keep my chin up but I have been crying all afternoon. I just so much wanted an answer today. . .

debra