Hi Goingplaces
I'm glad you found this sight to ask questions and to feel understood.
I noticed in your post you still haven't been referred to a Pain Management specialist who is also an anasthesiologist. A pain management doc is more likely to have experience with RSD/CRPS.
I can only imagine the amount of pain you feel having a disc touching the nerves sacs in your neck, mid and lower back. This contact can possibly be causing reactions from any and many body functions that could be causing the 'spells.'
First and foremost, Ihope you are referred to a competent and experienced doc who is willing to work with you and not refer you to yet someone else.
Good luck with your appt. at the U of K Research Center. I am hoping they have a Pain Management Center as well!
Sending hugs to you,
Hope4thebest