Thread: dealing with GN
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Old 06-07-2010, 11:56 AM
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Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Default Hello Beverly

I'm glad you indicated what GN stands for when I visited your profile page.....I must embarrassingly admit I did not know for sure I knew it had to be 'some' sort of Neuralgia or Neuropathy condition, as that is what a lot of us must deal with on a daily basis,......so I completely understand why you describe the pain as 'suicidal'.....many have used that description and it seems only the people who suffer pain on this level can understand this.

You have come to a wonderful place for support!
I looked up your condition and find that you suffer severe pain including your tongue, throat, ear, tonsils, etc......due to compromised facial nerves. Am I close? This must be absolutely aweful!

There are several places here that you could benefit greatly from. One of my good friends here is very active in the TN forum.
Just ask if you need help in finding your way around.
I found many friends by scrolling down the forums listed in the main menu and visited several of them. I now spend most of my time in the Peripheral Neuropathy and SCS forum
7 Months ago I came to this forum thinking in terms of wanting my life to end, and now I have found so much hope and support....and above all "Knowledge"!! People dig deep here at NT to find ways to combat the pain, because, like you indicated, lack of insurance, or not being able to 'wait' on getting answers from doctors......
We don't diagnose or attempt to take the place of medical professionals, but we DO take the steps it requires in staying above our conditions!!
We build our strength off of one another here.

It'll be good getting to know you. Let us know what you've been told so far about your condition and what you've tried......
The MAIN thing is to hang on to HOPE!! Things CAN and DO get better, we have to be determined. There are many wonderful subforums here which are packed full of information on how to combat pain on this level.....

Thank you for introducing yourself and please stick around!
You'll be amazed at how caring people really can be!!

Keep the Faith
Rae
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"Thanks for this!" says:
Koala77 (06-08-2010), MelodyL (06-07-2010)