Quote:
Originally Posted by SeamsLikeStitches
Hey there all,
Yep, my symptoms are back, full blown. I'm not hungry any more, I'm exhausted, and I just want to lie in bed with ice packs on my feet and sleep all the time! When I get hot, my back breaks out in pin pricks, my legs break out in them, and I just fight with all my might to stay awake! If I'm driving, at my desk at work, or wherever, I just can't keep my eyelids up!
Oh, new pain center too, my bladder! While sitting, it feels as if there is a rope tied around my bladder, and as soon as I stand up, there is a knife that starts stabbing me! Fun Fun!
The issue is, I'm out of vacation and sick time..., my doctor just throws meds at me, which make me more sleepy, then I can't work... and soon I'm going to lose my job again! AAAAAgggggghhhhhh!
I think today I'm going to go to a different doctor within our Kaiser program and ask for a different alternative. Maybe some Long Term Disability or something. Hoping they will give it to me!!!! Just so painfull...
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Just read your post and I think it could have been written about me, except for the part about the bladder. I have just weaned off of Cymbalta because I didn't think it was helping me. Well, I woke up today and every bone in my body hurt, even the ones in my ears, I think. Now wondering if the Cymbalta was helping.

I am so tired of hurting......I am too young to feel like this. I have worked hard and am just at the part of my life where I can travel, etc and now I feel like "poo" most of the time. Luckily for me, I have the best boss in the world. She is so compassionate and understanding. I have never called in sick (have certainly wanted to) but she knows when I am having a bad day and accepts that I will not be 100% on that particular day. I go to Cleveland Clinic on Monday, June 14th. I am hoping that they find something else to try cuz what we are doing now just isn't cutting it!! The heat just does me in too. My fingers feel 3 times their normal size and I am clumsy, especially when using the computer. I just want to sleep in my bed with the AC on

and wake up when my symptoms are in remission (if they ever are again). Is that too much to ask????