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Old 06-08-2010, 08:01 PM
TinaG TinaG is offline
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Join Date: May 2010
Posts: 5
10 yr Member
TinaG TinaG is offline
New Member
 
Join Date: May 2010
Posts: 5
10 yr Member
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mere, it's weird that you mentioned the frequent urination. I just got on this site, while googling Dr. Khurana, and that is how I happened upon your original thread. But now as I continue to read some of your posts, it's seems like we have alot in common. Just over the past few days, I swear I think I peed about 5 times an hour! I was up all night. It comes out of no where. I also have the dreaded gastroporesis. I have figured out that it is worse when I exercise. I used to walk/run every day, but I had to stop. Dr. Rowe at Hopkins told me to try "Spanx" undergarments and they do help a little, but I still get the dreaded bloat. It's something with my low blood pressure and the blood pooling in my abdomen. My migraines have been a little better, but I am so damned foggy all the time. I feel like I am dizzy, without spinning, if that makes any sense. I see Dr. Khurana on the 22nd and I am counting down the days. I am hoping he can decipher this mess. The one thing I have found that helps a little is "clean eating". When I eat as basic as possible, no additives, preservatives, all natural, organic, etc., I feel a bit better. Certainly not great, but it does help. I also started vyvanse for my low blood pressure (switched from adderall) and to increase my energy and it has helped me to stay awake during the day w/o causing additional headaches. I, too, feel like I am going to die, but as others have said, I have lived like this for over 10 years. And, when people look at me, they always say the same thing, "but you don't look sick". Well, I guess I should be grateful that I look healthy, but it sucks to feel like crap every day. Let me know how your testing goes w/Khurana. I am anxious to hear. I hope you are feeling better.
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