Thread: Solumedrol?
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Old 06-08-2010, 09:39 PM
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Join Date: Aug 2006
Location: East Coast USA
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15 yr Member
Lady Lady is offline
Senior Member
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Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
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Jane, How was the first day of your IVSM treatment? I hope it went well and you are off to sleep right now. Remember to eat well again before the next treatment.

Just some FYI rambling:

Eddie, I had ten days of 1 gram (1000 mg) when I couldn't walk when I woke up, that time in 2005. My relapse went acute and oral didn't cut it.

It was out-patient treatment. I was pushed in a w/c and had to be in the infusion center very early in the morning.

I had them change the site every two to three days. Any break in the skin can infect, so I watched carefully for any skin problems. I was weak as a new born kitten.

After the 10th infusion, I started to use my scooter, then rollator. I know you are mostly in a w/c but I saw the strength you have in your arms, in your pictures. Excellent!

I still don't have strong arms. A manual chair never worked for me. From there I went back to my scooter, rollator, and lastly my cane. It took time for the IVSM to work.

Since LDN, I don't need my cane anymore. But you never know, I just don't dwell on it. I excercise doing balance training with my wobble board and excecises for my legs. My arms still are not strong.

I have steroids for my back-up, if needed. I have done 5 days a few times after, but never three.
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