No clue why I have dysautonomia. And, by all accounts, on paper I look pretty good! In the past 6 months I have seen a cardiologist, rheumatologist, dermatologist, dentist, primary care doctor, gastro, ob/gyn and surgeon! I have had a ton of tests done and the only thing that continues (for the past 10 years) to come back positive is my ANA and when I had my TTT test I was potsy. The rheumy wasn't concerned b/c I really don't have any symptoms of lupus or an autoimmune disease. Cardio - all fine, even my 30 day event monitor was negative. Dermatologist was for lichen planus in my mouth and like most of my strange symptoms they offered me no explanation of what caused it. I had a hysterectomy two years ago and my gallbladder out in December b/c the docs were convinced that was what was causing my severe bloating. Now I know better. But, I only have figured this out b/c I have done my homework. I have even considered taking out all my fillings to get rid of the mercury. I am fortunate that I have a very compassionate primary care doctor who is willing to try anything that I ask her. She also will email Dr. Rowe when needed. I spoke with him once in early January and he was, by far, the most informative physician when it comes to chronic fatigue and POTS/neurally mediated hypotention. I am scared, though, because as I get older it seems like my symptoms are getting worse. I keep thinking that someone will find out that my _______ is broken and they can fix it. I have a hard time believing that I will just need to live with this or medicate the symptoms. My thougths are for all of us suffering from autonomic disorders is that we have a virus or some time of infection or our bodies are toxic. I just wish I knew how to fix it! I hope you find the stregth to get off the sofa over the next few days. I don't think I would be able to move if it weren't for the vyvanse. I think it is the only reason I make it through the day. I only take a low dose and I just added a small amount of prozac (10 mg.) and that seems to help as well. I also take topamax at night for the migraines and either claritan or allegra for the itching. Yikes. I sound like a druggie.

Feel Better!!!

Tina