I am 26, and have a porencephalic cyst in place of my entire Right frontal lobe. I have horrible headaches daily. I have visual disturbances, disorientation, short term memory loss, and extreme photosensitivity as well.
I had a subarachnoid hematoma, and seized shortly after birth. Forceps used during delivery were thought to be the cause. I was on Phenobarbitol for six months. However, my cyst was only diagnosed last year.
Does anyone else have this issue? I do not have any issues with mental delay or paralysis. I just want to know if anyone else has insight into treatment and/or prognosis. I feel like I am drowning, and no one knows how to save me. I am the mother of two girls. I want to be able to have a life with them.