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Old 06-11-2010, 09:32 AM
Porkette Porkette is offline
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Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
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Hi Oriana,
Be sure to tell your neuro that certain colors and sounds have bothered you and made you feel odd and then if you can discribe to the neuro how it makes you feel. Tell your neuro if after you've had a sz. if you are confused when the sz. is over with for a few seconds, your not sure where you are, if you are tired and if you have a headache.
If I may ask when you have a sz. do you fall to the floor or do you just not remember things like someone who has amnesia? If you have fallen to the floor you may be having tonic clonic (grand mal) sz. If you have a sz. where you just don't remember things for a few seconds you could be having absence (petit mal) or complex partial sz. If you find that when you've come out of a sz. and find yourself in another room you may have had a complex partial sz. Ask those that have seen you have a sz. if they have ever noticed you smacking your lips, wandering around, or picking at your clothing these are all signs of a complex partial sz. If they have just seen you staring like someone daydreaming then you could be having an absence sz. and they last about 30 seconds at the most.
You should ask your neuro to do a special veeg (video e.e.g.) so they can get your sz. on camera and the e.e.g. machine can pick them up also by doing this they will be able to tell what type of sz. you are having and give you the right AED's to stop or reduce your sz. I would also ask the neuro to do a specialized e.e.g. on you where they will flash different color strobe lights one at a time and by doing this than will be able to tell what colors trigger sz. I had this problem just like you and it's called "Photosensitive" where certain colors trigger sz. after I had brain surgery colors no longer bothered me. In regards to having a DNA test done the Neuro may tell you "what are you talking about or we don't do this." DNA testing has been going on for 2 yrs. now if not longer the Drs. just don't want to do the test because they are making money from the phamacutical co. for the more drugs and higher dosages the perscribe. I've found the fewer AED's I take the better off I am. I wish you the best of luck and keep us posted how you make out. Wishing you well and May God Bless You!

Sue
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