I had steroids last month (3 days IVSM, last infusion was May 6th) and I had about two weeks, or maybe 3 weeks of either reduced symptoms or no symptoms, and then every thing came flying back and I feel like crap and have horrible fatigue now. (and insomnia)

I dont know if the steroids failed, or if they simply just wore off. The numbness is irritating (numb from about the chest down, but I also have numbness in both arms) Both legs feel weak, and I fall asleep everytime I sit down, but cant fall asleep when I lay down (too uncomfortable I guess)

It was about two weeks after finishing the oral prednisone taper that I noticed my symptoms were coming back. My left hand has been numb since last fall, and that didnt seem to change with the IVSM this time around. When the symptoms started to come back, the numbness in that hand increased. I woke up one morning and my butt was numb and it seemed like the rest of me went numb over the next day or so. It doesnt seem to have gotten any better.

When I was on the steroids, I noticed that garlicky foods seemed to be what my stomach and mouth craved. I could still taste the steroids, but the garlic in the foods I was eating seemed to taste ok to me...a little steroid-ish, but not enough to turn me off from eating Italian or Greek foods. (lemon in the Greek foods didnt seem to cause me a problem either)