Quote:
Originally Posted by mjl1261
fmichael, you are the KING of CRPS research. You find the most amazing information out there. I am in awe. Picture me genuflecting.
The info about MVF is particularly interesting to me because part of my husband's exercise routine includes him moving the fingers of his good hand in tandem with the fingers of his injured hand, making fists, flexing the individual digits of his fingers, etc. Sort of a MVF without the mirror. The physical therapists started him doing this almost from Day 1.
I don't know how or if this helped in his recovery, but as I said above, I believe that exercise played a big part.
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Rise.
Seriously, I am thrilled to hear that PT worked so well for your husband; I just wished that they used MVF in the US.
What I had been told is that the economies of scale aren't there: it's too expensive to train someone who isn't gong to be doing it full time, and there just isn't the demand for it. But what your post made me realize is that it might make sense to train a physical therapist, where he or she can be gainfully occupied when not using the procedure on patients with acute CRPS. (Sadly, Dr. McCabe has written that the therapy - meant to trick the brain - no longer works once actual cortical reorganization has set in.)
And you are absolutely correct about the importance of exercise in general, even if all a patient can tolerate are stretching exercises and perhaps massage. As I admitted the other day, I forgot about this, once my PT discharged me years ago where strengthening exercises were clearly making me worse, only to be reminded of it the other day by my old neurologist, when I brought up my increasing inability to control spasms without opening the Marinol jar. He had a point: I had been out of any sort of PT for years.
Live and learn, forget and relearn. The dharma/tao of CRPS.
Mike