Thread: Tysabri Information and Check In part 2
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Old 06-11-2010, 06:11 PM
Grammie 2 3 Grammie 2 3 is offline
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Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Default I was contacted by Biogen
Today I spoke with a rep who wanted to know if I would be interested in a Ty group that would want feedback from me, allow me to ask questions. I didn't see a downside so I am participating, she said it would be about 4 times a year. She did confirm 49 pml patients-19 in the U.S. and said 67,000 on Ty worldwide with 38,000 in the U.S. She told me that those of us who called in were the reason Biogen is now more forthcoming ... that the odds for those of us on Ty over 2 years the odds are still not more than 1/1000.

Just wanted to share
Linda
forgot to say I had #46 this morning
Grammie 2 3 is offline  
"Thanks for this!" says:
Natalie8 (06-12-2010), Riverwild (06-11-2010), shayna (06-13-2010)