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Magnate
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Join Date: May 2007
Location: Heah!
Posts: 2,921
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Magnate
Join Date: May 2007
Location: Heah!
Posts: 2,921
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Yay for #46, Linda!
I'm glad to hear that you will be sharing your perspective, it's the patients who have been on this drug the longest that have the most to offer, both to the pharmas and to other patients, and the pharmas should be using those with experience who are willing to speak!
I'm also glad to hear that the reps are being more forthcoming. Just a year ago I had an argument with one of them, asking the woman how she could justify selling a drug that she couldn't back up with information that should be shared with patients before anyone else, information that she knew and that could make a difference in someone's mortality...she had no response, just looked horrified and kept spouting the party line. I truly felt bad for her because it was obvious that she wanted to speak and felt as if her job would be in jeopardy if she did.
I received my paperwork for the Stratify-2 study, filled it all out and dropped it all off, spoke with my doc and he said more than likely the blood draw would be next week sometime, with results due back in 4-6 weeks. I'm looking forward to the next step in our gaining information on this drug!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?
. I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!
diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09 .
Negative for JC virus antibodies! .
I'm doing alright and making good grades,
The future's so bright, I gotta wear shades! .
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