I too have found the burning pain intolerable. Many times simply laying in bed with a sheet over me, or worse, no sheet and the ceiling fan blowing on my skin.

The ultimate, taking any kind of shower. As soon as the water hits my skin it is just as you describe, having a severe sunburn on the torso and back regardless of water temperature.

I've yet to find a med that helps especially as my neurological disease (not MS) progresses involving my arms, hands, and feet, constantly burning. Feet feel like I'm walking on burning sand at the beach.

Sorry! Didn't mean to complain but this post struck a "burning" cord with me so I responded.