Annie,

Thanks so much for the reply. I have never understood the need to show how many people read a post versus how many reply. lol It seems like a good way to make someone feel really small. lol

Anyway, to be honest I'm not exactly sure which tests they ran. I'm usually pretty good about taking it all in, but this time I wasn't so much. I know they at least ran the basic test. I've read about the MUSK, but I don't know if that was ordered or not.

I was at Mayo, but I just saw a general neurologist. He was very kind and seemed very smart, but I'm just not sure he understood how bad off I really am. I had really wanted to see a neurmuscular specialist. My regular neruo seems to think I have a metabolic myopathy, possibly mitochondrial disease. I had a muscle biopsy come back with type 2 fiber atrophy and a few other minor abnormalities, but nothing that pointed to any specific disease.

I've been tested for nearly all of the basics; B12, thyroid, Lyme, etc. all are normal. I did have a copper deficiency at one time and that is one test we are still waiting on. Apparently, that can cause nerve and muscle problems.

I have had a few autoimmune tests come back slightly off. ANA and CRP, but they are not high now.

Thanks for the B12 info. Right now my plan is to try and eat better, take my vitamins, and do everything else within my power to feel better.

Thanks again for your help.