Well, I had a sucky Friday! Went to the neurologist for screening for entering the clinical trial. Went through the paperwork with him, through the ECG, blood work, neuro exam (which showed further problems than I'd known about), and a walking test.
My neuro thought, during his exam, that my thyroid felt "pretty generous". He also said he needed to call the doc in charge of the study, due to the fact that my pcp had changed my thyroid prescription due to the fact that my TSH levels were low; that indicated that my medication dosage was too high. It's been going up and down the last several months.
Anyway, the nurse sent me for the MRI. I drove up to the facility, filled the paperwork and was about to be taken back when the Neuro's nurse called. The doc from the study said I can't be in it, because I have to be stable on my medications for 2 months before the first injection. I talked to the nurse on the phone, and so I said, well I'll just wait the two months then. She said, nope, the study closes to new entrants next Friday

I was pretty peeved, to say the least. I had to drive back up there yesterday for the nurse to check the TB test on my arm. We sat and discussed what the neuro's thinking now. He's ordering an MRI so he can see what's up, and then we will determine the treatment option best suited from there.
I asked her why he hadn't ordered one since I haven't had one since I was dxd in late '08. She told me he knows that most patients have a dollar amount cap on lifetime insurance claims, and he tries not to drain the pool, so to speak. He also knew that I was going to go into this clinical trial, which would have required lots of MRIs, which would have been free for me. That's why he has waited.
So now it's uncertain what's going to go on...I have been so depressed the last couple of days...poor DH. He has to deal with his crazy wife!!

The neuro exam showed evidence of some pretty severe ataxia...I couldn't walk one foot in front of the other (used to be able to do that even 2 years ago with no problem); I could not for the life of me walk on my heels or hop on one foot. I kept telling my legs, "Do it!!" and they replied "NO!"
Then she had me hold my hand in front of my face, protected my face, and pulled on my arm and suddenly released it, telling me not to allow my arm to move towards my face. No good...good thing she had her hand in front of my face...

So I was even more depressed about that exam than being refused into the clinical study (well, maybe it was even). I want control over my body...I want this disease to go away. I am royally ******

Other than that, things are hunky-dory