I just read my last post above - gee I thought it was perfectly spelled. Ha Guess I was a little off eh?
Regardless, to day is my first day not having to go in for an infusion YEAH. I do feel better then earlier in the week, but not great. Loafing around today trying to get back to normal feeling. I am sort of worn out, taste is improving but a bit metal-ish (at least I ate and it wasn't reveolting to my taste buds). Still sore but leg is working again like it used to. Seems to have stopped the flare from getting really bad so I consider it either a total success or a fluke. Either way I am happy I feel better - could have benn the drug or just plain time. Side effects were not exactly fun but as my husband said, everybdy needs some "veg" time every now and again. He was great and my girlfriend was super taking me to the hospital, visits, etc. Shows me I am loved.
Now just trying to get back my energy- the mind is willing but the body is so easily fatigued just doing normal things like getting a cup of coffee, etc. Gotta pack for my work trip and take a shower sometime. Thanks you all for checking in on me and walking me through this infusion - it helped calm my mind and let me know all was going as expected.
