Hi. I'm sorry you don't have answers yet.

I know that MG can come on like a freight truck or a whisper. In some people it initially knocks them into a crisis while with others they can go for even years without major symptoms. So maybe you have MG and are slowly progressing.

If it's some kind of nerve involvement, that can't really be "seen." Even with MS, the damage on MRI (brain) is sometimes not seen right away either. I guess I would be suspicious of MS too due to the numbness sensations. Could be a virus too.

Has anyone tested you for APS (antiphospholipid syndrome) or any other clotting disorders?

Any problem with muscles or nerves can affect urinating. So can things like high blood pressure. Is yours normal?

Has anyone done any endocrine testing? Like thyroid, a chemistry including parathyroid testing?

Try taking a photo of your face when you feel "normal." Take it in the same exact place with you look straight ahead. Then take it again when you don't feel normal or at the end of a day. You would be surprised at what our eyes can miss but the camera does not.

I'm glad you are seeing a variety of specialists. It really does help. The neuro-ophthalmologist will really be able to determine if you have fatigable muscle weakness. I was amazed at how they test for that.

For the SFEMG, keep hydrated and warm. Try not to drink caffeine beverages for a day beforehand. There isn't "proof" positive but stay away from nightshade foods too because they act on the body like Mestinon (one of the drugs for MG) does. Nightshade foods are: Potato, tomato, eggplant, peppers and tobacco.

I hope you do find answers soon. In case you have MG, be careful out in the hot weather.

Annie