Thread: CSF headache
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Old 06-14-2010, 10:40 AM
blaba blaba is offline
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Join Date: Jun 2010
Posts: 2
10 yr Member
blaba blaba is offline
New Member
 
Join Date: Jun 2010
Posts: 2
10 yr Member
Frown CSF headache

Help!!!!!

I have been diagnosed as having spontaneous CSF leak which is causing headaches when I stand or sit. Went to Cleveland Clinic where they did all kinds of tests and 2 blood patches. I have had drug infusion therapy. They agree I have a leak but can't find it. They have pretty much given up and suggested pain management classes. Has anyone out there had the leak heal itself after time. Does anyone know of any other treatments. A local neurologist said I could try the Mayo clinic but I don't know if they could do anything that hasn't already been done. Has anyone else had the doctors give up but found a solution somewhere else?
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