KLA- WOW I have heard nothing but bad things about injections. I am soo sorry, and for him to hit a nerve makes it a thousand times worse. Hang in there!
I had surgery which caused my rsd in Janurary. I had a series of stellate ganglieon blocks until May when I finally got to my doctor where I am still. June 6th I had my SCS implanted. After that I was in remission for 6 months!!!!!!!! Some people say that they have spread with the SCS but my doctor is so careful in giving extra anesthetic, and post operative and pre op care. So after I was in remission for 6 months, I was in Oregon at my sisters house, and I was cooking boiling an artichoke and I took it out with tongs and the water came through and burnt my arm. My arm then within a matter of minutes flared up, and I felt it spreaed across my back of my shoulders, down my back, and an hour or so later when i stood up my leg was weak and on fire.
I then got back home and my dr and I decided to go forth with ketamine because of such the rapid spread that wasnt getting under control. It was one of the scariest times of my life. So we got ketamine, and I had to do a series of it, and then about every 3-5 weeks for the next five months after that. I was FINALLY at a point of where I was human again, I was off 6 of the meds I was on, and only on one to sleep and Cymbalta, and was an energizer bunny after each infusion because I felt good. So I was at the point of my infusion was lasting over 6-7 weeks!!! which is awesome!
So I had been needing my wisdom teeth out for two years, they were growing under my molars and had SOOO many sleepless nights because of them. So I was finally at a good place in life, I decided to get them out. I could only get one side at a time, so my left side came out. We did a nerve block before with my doctor, and I went straight over to my surgeon. My surgeon spoke with my doctor prior to the surgery, and not the anesthesiologist, and I think i wish i would of had him speak to him as well. My oral surgeon is an anesthesiologist, but he felt more comfortable bringing in someone to do my anesthesia. He was the best dental anesthesiologist in the Beverly Hills area, according to a few people so I decided to go with him. All was good until I woke up. all i thought was my rsd is back... but its not burning but this HURTS WAY MORE THAN ITS SUPPOSED TO. I have not had any burning pain in the last 4 days shy of a month, but its pain thats unreal. If you read my other post that I posted it will give more info.
Oh and also, somewhere in this time when I was in remission, I was ironing my sweater for church, and the steam came out from the iron like there was pressure built up and then it melted my skin on my stomach by my belly button. Literally melted it down. That burn hurt soooo bad. I had ketamine a few days after to prevent a flare in my back, arm or leg which it did!!! but the skin was still melted and still had to heal, and as we all know anything with rsd makes it 100000 times more painful!!!!!
I think everytime we flare it just depends where it is and how it comes, if we have another surgery, if we have a burn, ETC. I hope I was able to answer your question a little... there is always HOPE... as hard as it is to see over the mountain, we have to have faith that we will get there. Right now, I am in so much pain and am in the doubt that it will ever get better. but typing this out gave me a little encouragement to keep on going after all I have been though. If you have any questions at all feel free to ask me more...