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Old 06-14-2010, 07:14 PM
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Erin524 Erin524 is offline
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Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
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I saw my regular doctor today.

He's ordered a B12, TSH (or is it THS?...testing my thyroid test), and a CBC test. My dad (a nurse anesthetist) said that the CBC looks at all sorts of stuff, like looking to see if I have an infection somewhere, and seeing what my white blood cells are doing.

I just wanted to see if there's some other explanation for the ever-so-craptastic fatigue that seems to be sucking all my energy out of me thru my toenails. (really, it feels like all my energy runs out thru my feet when I'm standing)

So, I wont get a B12 shot till after they get the blood tests back.

This doctor also said something surprising to me. Every time I go see him...I ask about LDN. Lately I've been telling him "ok, here's my mandatory question about the LDN". Know what he told me. He said for me to go on the internet and see if there are any trials or any doctors online willing to Rx it.

what...wha?? huh? *blink blink* I think he basically just told me to go get a Rx from someone who will Rx, even if it's over the internet. So, he pretty much just told me it was ok with him for me to get a Rx for it...just not from him.

Holy cowpies! I've got to look up someone on the internet now and see if I can find someone who will do a phone consult to get me some LDN!!

I just tried some Valium that I got from the neuro's office this morning. (finally got to the pharmacy to pick it up) Got home and got the pill splitter out and broke a pill into 1/4ths. (pills are really low dose, 5mg each) Took one of the 1/4ths and I think I just felt that kick in. Some of the spasticity in my diaphragm let up...my neck still feels like a tangled ball of nerves and muscles, but I think I feel it helping the Hugging sensation.

I hope the Valium helps me sleep tonight. I might do a half pill for that.

I scheduled some PT for myself next week. Both the substitute neuro and my regular doctor said for me to do a lot of stretching and try to exercise and do stuff. I'll try it. I know I wont like it, but I'll try it.

My left hand feels really weird. Kind of like it did after I broke it when I was a kid, and I tried to go swimming an hour after getting the cast off and my hand was so weak I had to swim one handed. (swam in circles) I guess I have a little weakness there. It's in my shoulder too.
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"Thanks for this!" says:
Lady (06-14-2010)