Originally Posted by loretta

Hi DC, I am so sorry your RSD is back. I also had the blessing of having two remissions. following pt and massage therapy. Original RSD came following surgery. Each remission was about 1 1/2 years. I didn't know I had RSD, just was told frozen shoulder. Was water skiing and felt pull in hand-swelling, discoloration, loss of use, alloydina, edema, frozen hand-misdiagnosed as RA, then changed Drs. and diagnosed RSD. That was almost 10 years ago. I did get part use of hand back, about 50% and thankfully have full use of other hand , legs, feet. Have full body and internal RSD-I know that is not what you want to hear, but it doesn't always go full body. Sooner the treatment the better. Do you have a Dr. experienced in RSD.
I didn't get a good Dr. for another 4 years after the water skiing accident.
Then I fell at a gas station and ruptured a disk in neck. I don't think I had found the good Dr. yet.
I know physical therapy and massage therapy helped me. Tens Unit and Desensitizing- take 5-6 plastic bowls and put cotton, rice, coffee grounds, pieces of fabric, etc run your hands, feets thru different bowls. It gradually desensitizes , which is a good thing.
I agree with you on the lesions. I won't go thru that pain and cleaning without being in hospital. Mine got bad infections.
Please don't assume you won't go back into remission- It is very possible, I just had such a long delay in diagnosis, so wasn't on treatment besides pt and massage, which actually twice put me into remission.
We can, and so sorry you are going thru this. Keep in touch, we learn so much from each other and the encouragment and support is wonderful. Thinking of you, your friend, loretta